000			03397nam a22005297a 4500
001			sulb-eb0024178
003			BD-SySUS
005			20160413122428.0
007			cr nn 008mamaa
008			130130s2013 gw | s |||| 0|eng d
020			_a9783642331169 _9978-3-642-33116-9
024	7		_a10.1007/978-3-642-33116-9 _2doi
050		4	_aK4240-4343
050		4	_aK1401-1578.25
072		7	_aLN _2bicssc
072		7	_aLAW051000 _2bisacsh
082	0	4	_a343.099 _223
245	1	0	_aComparative Issues in the Governance of Research Biobanks _h[electronic resource] : _bProperty, Privacy, Intellectual Property, and the Role of Technology / _cedited by Giovanni Pascuzzi, Umberto Izzo, Matteo Macilotti.
264		1	_aBerlin, Heidelberg : _bSpringer Berlin Heidelberg : _bImprint: Springer, _c2013.
300			_aVIII, 339 p. 7 illus. _bonline resource.
336			_atext _btxt _2rdacontent
337			_acomputer _bc _2rdamedia
338			_aonline resource _bcr _2rdacarrier
347			_atext file _bPDF _2rda
505	0		_aFrom the contents: Property and Privacy in Biobanking -- Intellectual Property and Biobanks -- Biobanks: The Perspective of Biobanker's.
520			_aIn the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent” as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property.
650		0	_aLaw.
650		0	_aBioinformatics.
650		0	_aMedical laws and legislation.
650		0	_aInternational law.
650		0	_aIntellectual property _xLaw and legislation.
650	1	4	_aLaw.
650	2	4	_aInternational IT and Media Law, Intellectual Property Law.
650	2	4	_aBiomedicine general.
650	2	4	_aComputational Biology/Bioinformatics.
650	2	4	_aMedical Law.
700	1		_aPascuzzi, Giovanni. _eeditor.
700	1		_aIzzo, Umberto. _eeditor.
700	1		_aMacilotti, Matteo. _eeditor.
710	2		_aSpringerLink (Online service)
773	0		_tSpringer eBooks
776	0	8	_iPrinted edition: _z9783642331152
856	4	0	_uhttp://dx.doi.org/10.1007/978-3-642-33116-9
912			_aZDB-2-SHU
942			_2Dewey Decimal Classification _ceBooks
999			_c46270 _d46270